18 August 2023 CNA
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TABLE OF CONTENTS
A. GS 1 Related B. GS 2 Related SOCIAL JUSTICE 1. ALS patients and caregivers struggle with multiple issues related to disease C. GS 3 Related D. GS 4 Related E. Editorials GOVERNANCE 1. Gaps in Births and Deaths Registration (Amendment) Act 2. Word choice in data protection law, a dilution of rights 3. Is there a need to replace the IPC, the CrPC and the Evidence Act? F. Prelims Facts G. Tidbits 1. President Murmu launches warship Vindhyagiri 2. WHO chief asks nations to unlock power of traditional medicine H. UPSC Prelims Practice Questions I. UPSC Mains Practice Questions
A. GS 1 Related
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B. GS 2 Related
1. ALS patients and caregivers struggle with multiple issues related to disease
Syllabus: Issues Relating to Development & Management of Social Sector/Services like Health, Education, Human Resource etc.
Mains: Analysis of the challenges in ALS diagnosis, the mental health impact on patients and caregivers, and the role of government policies in providing financial support.
Prelims: About Amyotrophic Lateral Sclerosis (ALS)
Context:
Amyotrophic Lateral Sclerosis (ALS) inflicts severe challenges on patients, some of whom have to communicate through blinking due to paralysis. Caregivers also bear immense physical and emotional burdens.
Introduction
- Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease affecting motor neurons controlling voluntary functions.
- Muscles dependent on these neurons atrophy, leading to loss of movement and function.
ALS Progression and Challenges
- ALS affects motor neurons controlling respiratory muscles, impacting breathing.
- No effective cure; the best therapies involve drugs and interventions to extend life.
- Survival time averages three years; disease progression varies in individuals.
Diagnosis Challenges
- Onset to diagnosis takes 8 to 15 months on average due to the absence of definite biomarkers.
- Motor cell failure detection is required in at least 2 regions of the body for ALS diagnosis.
- Diagnosis complexity leads to an agonising wait for caregivers and patients.
Impact on Caregivers
- Caregivers’ lives drastically change; they become primary support for Persons with ALS (PALS).
- Challenges include daily care, emotional stress, and altered routines.
Mental Health Impact
- The high prevalence of depression among ALS patients affects the quality of life and mobility.
- PALS lose independence, leading to social withdrawal and depression.
Infrastructural Inefficiencies
- Lack of wheelchair accessibility affects the quality of life.
- Buildings and public spaces are often not wheelchair-friendly.
- Financial demands: Medications, nurses, physiotherapy, and modifications cost significantly.
Financial Challenges and Government Policy
- ALS imposes substantial financial burdens on patients and caregivers.
- National Policy for Rare Diseases (NPRD), 2021, offers financial assistance for rare diseases.
- ALS qualifies as a ‘rare disease‘ as per global epidemiological studies, but classification criteria vary.
Conclusion
- ALS patients’ struggles encompass physical, emotional, and financial challenges.
- Caregivers face significant lifestyle changes and mental health impacts.
- Government policies like NPRD offer some relief but criteria for ‘rare disease’ classification need clarity.
Nut Graf: Amyotrophic Lateral Sclerosis (ALS) debilitates patients causing paralysis and communication through blinking. Caregivers face life-altering adjustments, emotional stress, and financial strains. Government intervention in the form of assistance and making public spaces wheelchair friendly is of utmost importance.
C. GS 3 Related
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D. GS 4 Related
Nothing here for today!!!
E. Editorials
1. Gaps in Births and Deaths Registration (Amendment) Act
Syllabus: Government Policies and Interventions for Development in various sectors and Issues arising out of their Design and Implementation.
Mains: Provision of Registration of Births and Deaths (Amendment) Act, 2023 and how will it improve service delivery?
Context: The Registration of Births and Deaths Act (1969) is amended through the Registration of Births and Deaths (Amendment) Act, 2023 to enhance data management, service efficiency, and transparency.
Introduction:
- The existing Registration of Births and Deaths (RBD) Act of 1969 is undergoing an overhaul through the Registration of Births and Deaths (Amendment) Bill, 2023.
- Recently approved by Parliament and the President of India, this amendment seeks to address the limitations of the original legislation.
 Lacunae in the Act:
- Aadhaar Number for Births and Deaths:
- The Amendment Bill requires the Aadhaar number of parents during birth registration, yet remains silent on collecting Aadhaar numbers for deceased individuals.
- This omission impedes the comprehensive updating of databases and transparent public service delivery.
- Central and State Databases:
- Although the Amendment Act reinforces the roles of Registrar General and State Chief Registrars, the necessity of a national-level database is questioned.
- The potential to transmit data directly from state-level databases to other systems could render a separate national database redundant.
- Cause of Death Certificate:
- The Amendment Act mandates cause-of-death certificates for medical institution deaths.
- However, challenges arise due to uncertain diagnoses, differences in alternative medicine systems, and unavailability of practitioners during non-medical deaths.
Positive Expected Outcome:
- Efficient Public Service Delivery:
- The Amendment Act’s central and state-level databases aim to enhance service provision efficiency.
- Expected to facilitate updates to various critical systems, including Aadhaar, electoral rolls, etc.
- Streamlined Birth and Death Registration:
- Central and state-level databases reduce redundancy and enhance coordination in data management.
- Anticipated streamlined issuance of birth and death certificates.
- Enhanced Data Sharing:
- The Amendment Act enables more efficient data flow to systems like Aadhaar, electoral rolls, etc.
- Holds the potential to significantly improve public service delivery and data accuracy.
- Timely Certificates in Tragedy:
- Proposed ‘presumed death’ provision could expedite death certificates for families affected by natural disasters or accidents.
- A compassionate approach to alleviating the distress of waiting for extended periods.
- Recognized Proof Documents:
- The Amendment Act acknowledges birth certificates as valid proof for various purposes.
- This provision, although not requiring an amendment to the Act itself, underscores the potential for more efficient service delivery through rule changes or executive orders.
Nut Graf: The Registration of Births and Deaths Act (1969) is undergoing transformation via the Registration of Births and Deaths (Amendment) Act 2023. While it addresses limitations and streamlines data management, concerns arise over potential misuse, parliamentary oversight, and challenges in accurately recording causes of death, posing questions about practical implementation and outcomes.
2. Word choice in data protection law, a dilution of rights
Syllabus: Governance, E-governance
Mains: Provisions of the Data Protection Act and debate between the Right to privacy and state limit to surveillance.
Context: India’s Data Protection Act 2023 raises concerns: weak consent standards, convenience over necessity, erosion of rights, and multipurpose data use.
Introduction: India’s long-awaited data protection law, the Digital Personal Data Protection Act, 2023, has been finalized. While progress is better than inaction, a critical analysis is needed to gauge its impact on privacy rights. The effectiveness of the law hinges on two fundamental aspects: consent-based and non-consent-based use of personal data.
Standard Situations and Concerns:
- Consent Conundrum: The core challenge in data protection is defining the consent standard. Do individuals truly have a say in how their data is used? For instance, online behaviour might be scrutinized for personal profiling.
- Provisions in the Act: The law introduces provisions requiring informed consent through explicit positive actions. However, these provisions are weakened by a clause permitting data use if individuals haven’t explicitly refused consent. This phrasing implies that non-indication of refusal equates to consent, fostering ambiguity.
- Ambiguity and Confusion: The vague language raises concerns about interpreting consent standards, leading to legal confusion and business uncertainty. The weaker provision could potentially overshadow the stronger one.
Also read Digital Personal Data Protection Bill, 2022.
Balancing Convenience and Necessity:
- Navigating Public Functions: The law acknowledges that strict consent might hinder certain public functions like identity verification or welfare distribution.
- Previous Drafts vs. New Law: Earlier drafts emphasized data use without consent only if “necessary” for specific state functions. The new law alters this criterion, permitting data processing if it is “for” certain legitimate uses, not strictly required necessity.
- Impact on Privacy: This subtle wording shift significantly impacts the level of privacy protection by allowing convenience-driven data processing rather than necessitated use.
Rights Erosion and Lack of Control:
- Notification and Correction Rights: When data is used without consent, individuals remain uninformed and lack the right to rectify incorrect or unnecessary data. The inability to correct or erase non-consensual data undermines informational privacy principles.
- Data Multipurpose Use: The law allows data collected for one non-consensual purpose to be freely used for other purposes. This contradicts established principles like necessity and purpose limitation upheld by the Indian Supreme Court.
Broader Concerns and Conclusion:
- Deeper Concerns: Critics highlight concerns about the law’s impact on rights to information, free speech, surveillance reform, and regulatory structure.
- Policy Choices Over Legalities: While some might view the issues discussed as mere legal details, they represent deliberate policy choices that erode potential privacy rights.
- Enhancing Data Protection: To ensure the data protection law effectively safeguards personal information, addressing these flaws and ambiguities becomes imperative.
Nut Graf: Data Protection Act 2023, through its word choices and provisions, introduces ambiguities that could undermine privacy rights. Balancing convenience with necessity, notification rights, and data multipurpose use raise concerns about its effectiveness. It’s crucial to address these issues to create a more robust and meaningful data protection framework.
3. Is there a need to replace the IPC, the CrPC and the Evidence Act?
Syllabus: Important Aspects of Governance, Transparency and Accountability
Mains: Need for criminal law reform and provision of the recent bill introduced
Context: Proposed Bills replacing IPC, CrPC, and Evidence Act spark debate on modernization, ambiguity, police powers, gender issues, and impact on precedents.
Introduction: Bills to Replace IPC, CrPC, and Evidence Act
- On August 11, 2023, Union Home Minister Amit Shah introduced three Bills in the Lok Sabha with the aim of replacing the Indian Penal Code (IPC), the Code of Criminal Procedure (CrPC), and the Indian Evidence Act.Â
- These proposed changes have prompted discussions about the necessity of such replacements, the potential misuse of existing laws, and the implications of the new Bills.Â
Need for Change: Reflecting Changing Values
- Changing Societal Dynamics: The current laws – IPC, CrPC, and Evidence Act – have been operational for decades but may not fully align with evolving societal values and democratic aspirations.
- Modernization Efforts: The proposed Bills seek to align the laws with contemporary realities. For example, the Bharatiya Nyaya Sanhita Bill amends 175 sections, introduces 8 new sections, and repeals 22 sections of the IPC to reflect these changes.
Read more on Indian Evidence Act.
Concerns and Ambiguities in the New Bills
- Detention Without Charges: One contentious point is the extension of detention without charges from 60 to 90 days in the new Code of Criminal Procedure. This raises questions about the balance between security concerns and individual rights.
- Police Discretion and Use of Force: The new CrPC grants discretionary powers to the police, allowing actions like handcuffing, arrest of women after sunset under exceptional circumstances, and use of force during arrests. This discretion could potentially legitimize encounters and violence.
- Custodial Period: The Bharatiya Nyaya Sanhita Bill proposes an extended custodial period of up to 90 days. The need for such an extension is debated, considering potential implications for due process.
Similarities and Changes in the New Bills
- Continuity of Certain Practices: Despite changes, the new Bills retain some existing practices, such as violence, detention without charges, and potential ambiguities in defining offences.
- Ambiguity in Definitions: The replacement of “sedition” with “subversive activities” and the broad definition of “terrorist acts” raise concerns about ambiguity and misuse of these terms.
- Issues of Gender and Sexual Offenses: The new laws address sexual offences against women but lack clarity on offences involving men or non-binary individuals.
Impact on Existing Precedents and Jurisprudence
- Disruption of Legal Precedents: The repeal and revocation of key provisions raise concerns about the impact on established legal precedents and case laws.
- Redefinition of Offenses: New provisions like ‘subversive activities’ and changes in numerical section references could complicate legal documentation and enforcement.
Misuse of Existing Laws: Addressing Concerns
- Prevention of Misuse: While some sections of the existing laws have been misused, it is important to address misuse without rendering the entire law irrelevant.
- Specific Changes: The removal of Section 377 pertaining to consensual sex between same-sex has been a significant step. However, concerns remain about repealing provisions without appropriate replacements.
Read more on Section 377 of IPC.
Welcome Changes in the New Bills
- Definition of Terrorism and Organized Crimes: The attempt to define terrorism and organized crimes is seen as a positive step toward addressing these issues.
- Expedited Trials: The provision for expediting trials, such as requiring judgments within 30 days after trial conclusion, and limiting adjournments to two, is welcomed for enhancing the efficiency of the criminal justice system.
Nut Graf:Â The introduction of the new Bills to replace the IPC, CrPC, and Evidence Act has sparked discussions about their necessity, potential impacts, and the need for public input. While there are concerns about ambiguities, potential misuse, and disruption of legal precedents, there are also positive aspects such as attempts to modernize the laws and expedite trials. The debate surrounding these changes underscores the importance of balancing evolving societal values, individual rights, and effective law enforcement.
F. Prelims Facts
Nothing here for today!!!
G. Tidbits
1. President Murmu launches warship Vindhyagiri
- President Droupadi Murmu launches Vindhyagiri, the final Project 17A frigate by the Indian Navy at Garden Reach Shipbuilders and Engineers (GRSE) in Kolkata.
- The launch enhances India’s maritime capabilities and aligns with Atmanirbhar Bharat for indigenous shipbuilding.
- Project 17A signifies self-reliance and technological advancement.
- The President highlights the Navy’s proactive role in securing the Indian Ocean Region and Indo-Pacific.
- After launch, Vindhyagiri joined sister ships at Outfitting Jetty for equipment trials before delivery and commissioning.
2. WHO chief asks nations to unlock power of traditional medicine
- Global Summit on Traditional Medicine
- Integration into National Health Systems
- Ghebreyesus hopes the “Gujarat Declaration” will embed traditional medicine in national health systems.
- Calls for merging traditional medicine and science to maximise its potential.
- Ayush Ministry’s Role
- Co-hosted by Ayush Ministry, the event aims to unlock traditional medicine’s power.
- Emphasises the importance of science-backed traditional healing practices.
- Health-Related Sustainable Development Goals
- Health Minister Mansukh Mandaviya highlights G-20’s collective potential for the UN‘s health-related Sustainable Development Goals.
- Envisions a world united under the ethos of “One earth, one family, one future.”
- Global Centre for Traditional Medicine
- WHO’s Global Centre for Traditional Medicine, headquartered in Jamnagar, Gujarat, advances traditional medicine worldwide.
- Accelerates global progress in traditional medicine practices.
- Medical Value Travel
- Minister Mandaviya launches Advantage Healthcare India portal for medical value travel.
- Medical value travel facilitates specialised resources and services sharing for unmet global healthcare needs.
- Ghebreyesus suggests leveraging medical value travel for offering unique and unavailable healthcare solutions.
H. UPSC Prelims Practice Questions
Q1. Consider the following statements about Amyotrophic Lateral Sclerosis (ALS):
- ALS affects sensory neurons in the spinal cord.
- Motor neurons controlling voluntary functions are impacted by ALS.
- Muscle atrophy occurs due to progressive motor neuron death.
How many of the statements given above are correct?
- Only one
- Only two
- All three
- None
CHECK ANSWERS:-
Answer: b
Explanation:Â
ALS affects motor neurons, not sensory neurons. Motor neurons controlling voluntary functions are impacted, leading to muscle atrophy.
Q2. With reference to Project 17A (Alpha) frigates, consider the following statements:
- Project 17A is a program aimed at developing advanced submarines for the Indian Navy.
- They are being built under the Make in India initiative with indigenous technology.
- They are being constructed by Hindustan Shipyard Limited.
How many of the statements given above are correct?
- Only one
- Only two
- All three
- None
CHECK ANSWERS:-
Answer: a
Explanation:Â
Statements 1 & 3 are incorrect; Project 17A pertains to frigates, not submarines. They are manufactured by Mazagon Dock Shipbuilders (MDL) and Garden Reach Shipbuilders & Engineers (GRSE).
Q3. Which Indian state hosted the first WHO Traditional Medicine Global Summit in 2023?
- Maharashtra
- Rajasthan
- Gujarat
- Karnataka
CHECK ANSWERS:-
Answer: c
Explanation:Â
The first WHO Traditional Medicine Global Summit was hosted by the state of Gujarat.
Q4. With reference to the Digital Personal Data Protection Act, 2023, which of the following statements is/are incorrect?
- The Act allows data usage if individuals “have not indicated” refusal.
- It prohibits data processing without consent for any purpose.
Select the correct answer using the code given below:
- 1 only
- 2 only
- Both 1 and 2
- Neither 1 nor 2
CHECK ANSWERS:-
Answer: b
Explanation:Â
Statement 2 is incorrect as the Act allows data processing without consent for certain legitimate purposes.
Q5. With reference to the Registration of Births and Deaths (Amendment) Bill, 2023, consider the following statements:
- The primary objective of the Bill is to create a national and state-level database of registered births and deaths to enhance public services.
- The Registrar General of India is solely responsible for maintaining a state-level database of registered births and deaths.
- It mandates medical practitioners to issue cause-of-death certificates
How many of the statements given above are incorrect?
- Only one
- Only two
- All three
- NoneÂ
CHECK ANSWERS:-
Answer: a
Explanation:Â
Statement 2 is incorrect; the Chief Registrars of births and deaths in each state are responsible for maintaining the state-level database.
I. UPSC Mains Practice Questions
- Provisions of the Births and Deaths Registration (Amendment) Act leave more questions than answers. Do you agree? Examine. (250 words, 15 marks) [GS-2; Polity and Governance]
- Elaborate on the key provisions of the National Policy of Rare Diseases of the Government of India. Is there a need to tweak the policy to make it more inclusive? (250 words, 15 marks) [GS-2; Governance and Social Justice]
Read the previous CNA here.
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